Mum, 46, plagued by ‘Alice in Wonderland syndrome’ feels her body ‘blowing up’ as the world around her shrinks

A MUM plagued by rare ‘Alice in Wonderland syndrome’ feels like her body is swelling while the world around her shrinks and time is “standing still”.

Alice in Wonderland syndrome, or Todd’s syndrome, is a neurological condition that causes perceptual disturbances to sight, touch, and time.

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Layla Chester, 46, suffers from a rare neurological condition called Alice in Wonderland syndrome[/caption]

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She fist started experiencing symptoms after going to bed with a migraine during the pandemic[/caption]

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During an attack, Layla will feel the sensation of her body expanding[/caption]

Named after the famous children’s storybook, the rare syndrome can make things look and feel larger or smaller than they actually are and distort your sense of reality.

Layla Chester, 46, first experienced the bizarre symptoms after going to bed with a migraine during the pandemic.

When she woke up, her depth perception was distorted, which she described as “looking through a telescope backwards”.

Her GP referred her to a neurologist, and after extensive tests she was diagnosed with the rare condition in July 2020.

Layla has been living with the syndrome – named after the experiences of Lewis Carol’s famous protagonist – for four years.

I can be having a conversation and then suddenly it’s like time has slowed down or stopped and I can’t keep up with what’s being said. It’s like there’s a delay on the phone

Layla Chester

She claims that episodes can last up to a few hours and are triggered by migraines and tiredness.

Layla says she “literally feels the sensation” of her body expanding.

The mum-of-two had to sell her dream car in case an attack came on while driving.

She takes three tablets a day to manage her condition, but Layla admits she still “lives in fear” of an attack, which can leave her feelings “distressed, confused and embarrassed”.

Laya, who works in a supermarket, from Hereford, Herefordshire, said: “It’s really hard to explain, but when an attack is triggered, it’s awful.

“It literally feels like my body is growing and there’s nothing I can do to stop it.

“I have no perception of distance, so I can’t walk.

“I had to sell my dream car, because I can’t drive anymore in case it happens while I’m behind the wheel.

“My perception of time is also affected.

“I can be having a conversation and then suddenly it’s like time has slowed down or stopped and I can’t keep up with what’s being said.

“It’s like there’s a delay on the phone, and I’ll answer questions behind time.

“I sometimes disassociate – I’ll stare into space and it’s like I’m completely gone.

“It’s really scary and bizarre.”

‘UPSIDE DOWN’

Layla, who is mum to Lewis, 23, and Ax, 18, says her life was “turned upside down” when she woke up one morning in July 2020, with distorted vision.

Fearing she had a brain tumour, Layla consulted her GP, who was left “stumped” by her peculiar symptoms.

“I was convinced it was a tumour,” Layla said.

“It was during Covid, so I had an over the phone appointment, and my GP had no idea what was wrong with me.

“I was referred to a neurologist, and after a brain scan and a lot of back and forth I was finally diagnosed with Alice in Wonderland syndrome.”

Layla’s Alice in Wonderland syndrome has had a huge impact on her life.

She is no longer able to drive, and her confidence and mental health have been seriously affected.

Layla has no idea when an attack will occur, so she is constantly “on edge” just in case.

I thought I was growing and everything around me was shrinking, and to help calm me down my mum handed me a cup of tea in an Alice in Wonderland mug

Layla Chester

She said: “It’s really embarrassing when it happens while I’m at work – I have to stop what I’m doing and sit down somewhere quiet and wait for it to pass.

“Sometimes when I walk down the aisles of the supermarket that I work in, it feels like the shelves are closing in on me.

“It feels so real.

“I once had an attack at my mums house, where I thought I was growing and everything around me was shrinking, and to help calm me down my mum handed me a cup of tea in an Alice in Wonderland mug.

“That really freaked me out!

“Sometimes I experience olfactory hallucinations, which means I can smell something that’s not there.

“I’ve woken up in the night thinking there’s a fire, but there’s nothing there!”

Layla has since set up at TikTok account and built an online community for other people who also suffer from the syndrome.

Layla said: “I set up a TikTok, and speaking to other people with Alice in Wonderland syndrome has really helped.

“I’m not going crazy, it’s very real and isn’t just happening to me.”

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Layla’s attacks are triggered by migraines and tiredness[/caption]

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They can last a few hours and Layla lives in fear of them coming on[/caption]

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Layla had to sell her dream car for fear she’d be hit with an attack while driving[/caption]