Our son's terrifying illness is so rare only 28 other children have it... now we're on a quest to find a cure

Angus Powell, three, carries a rare mutation in the CRELD1 gene. The disorder it causes has now been named: Jeffries-Lakhani Neurodevelopmental Syndrome, or JELANS.

Our son's terrifying illness is so rare only 28 other children have it... now we're on a quest to find a cure


Click the link to join the registration on WhatsApp: https://chat.whatsapp.com/KThkuZlWaTcCu3iJHGBmLM


Click the link to join the registration on WhatsApp: https://chat.whatsapp.com/KThkuZlWaTcCu3iJHGBmLM


Click the link to join the registration on WhatsApp: https://chat.whatsapp.com/KThkuZlWaTcCu3iJHGBmLM
Angus Powell, three, carries a rare mutation in the CRELD1 gene. The disorder it causes has now been named: Jeffries-Lakhani Neurodevelopmental Syndrome, or JELANS.

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